As we celebrate International Cochlear Implant Day on February 25, it’s a perfect time to highlight the life-changing potential of cochlear implants (CIs) while sharing some practical insights. If you’re considering a CI, here are 10 things CI users have shared about what they wish they’d known before getting a CI—covering the highs, the challenges, and the realities of this incredible technology.

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1. It’s a Marathon, Not a Sprint

‍Getting a cochlear implant is just the beginning. The surgery is straightforward, but the real work starts afterward. Rehabilitation, practice, and patience are key to adapting to a new way of hearing. Progress takes time, but the rewards are worth it.

2. The Financial Commitment Is Lifelong

In New Zealand, eligible adults receive one publicly funded CI, along with processor upgrades when repairs are no longer economical. However, there are ongoing costs to consider. Replacement batteries, repairs (outside of warranty), and accessories are not publicly funded, and it's recommended to insure your CI processor under your contents insurance.If your processor malfunctions or breaks, you may be “off-air” for a few days while a repair or replacement is sent, which can be distressing. While CI programmes offer loan processors in emergencies, these can still take time to arrive. Many people purchase old processors as backups for such situations. Being aware of these costs and planning ahead will save you stress in the long run.

3. Travelling for Appointments Can Be a Challenge

CI centres are based in Auckland, Wellington, and Christchurch, so travelling to appointments can be a challenge if you live far from these locations. However, advancements like remote mapping and connected care models are making follow-up appointments more accessible.

4. The Technology Can Be Complex

While CIs use high-tech features like Bluetooth for seamless connectivity, managing the technology can still be tricky. Bluetooth connections can drop out unexpectedly, like during a phone call, which can be frustrating. Cochlear Ltd has excellent captioned YouTube videos to troubleshoot these issues, but sometimes it takes a tech-savvy friend or family member to help.Accessories, while helpful, can also be a pain to set up if you’re not comfortable with technology. Local CI groups are a fantastic resource for finding practical, easy solutions and learning from others.

5. Sound Won’t Be Natural at First

When your CI is first activated, sounds may seem robotic or mechanical. This can be disorienting, but over time your brain adapts, and the sound becomes more natural. Patience and persistence are key in this phase of rehab.

6. It’s Not Waterproof, But There Are Options

Cochlear implants can’t get wet, but waterproof accessories are available so you can swim, or enjoy water-based activities without worry. Keep in mind that these accessories are an additional cost, so it’s worth budgeting for them in advance.

7. Size vs. Usability Is a Trade-Off

Modern CI processors are getting smaller and more discreet, which is a win for many. However, the smaller size can make them harder to handle, especially if you have limited dexterity. Changing batteries or pressing small buttons can be challenging, so it’s important to practice and find methods that work best for you.

8. Rehabilitation Is Crucial

Adapting to a CI requires effort. Listening exercises, audiologist appointments, and practice with family and friends all play a critical role in improving your hearing experience. It’s not an overnight process, but the results are worth the effort.

9. You May Need Support During “Off-Air” Moments

If your processor isn’t functioning, you’ll be unable to hear until it’s repaired or replaced. These moments can be stressful, but having a backup plan—like a spare processor or quick access to a loaner—can help. It’s also good to connect with others in the CI community who understand the challenges.

10. The Community Is Your Best Resource

Joining a local CI support group can be invaluable. You’ll meet people who’ve faced the same challenges and can offer practical advice, from managing technology to finding cost-effective accessories. These groups also provide emotional support and camaraderie that make the experience easier.

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Final Thoughts

Getting a cochlear implant is a big decision with life-changing potential, but it’s important to go in with your eyes open. From the financial commitments to the technology challenges, being prepared will help you get the most out of this incredible opportunity. On International Cochlear Implant Day, let’s celebrate the amazing possibilities this technology offers and the resilience of those who choose to embrace it.

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